My road came to an unexpected halt on November 9, 2010.

I was bicycling to work that morning when a garbage truck drove into a Philadelphia bike lane. I was in that bike lane.

Trauma surgeons saved my life, but they had to amputate my left leg above the knee. The accident changed my body and health forever.

The journey of a thousand miles begins with one step.

For more than a decade, that journey has become my way of moving through the world.

I am a person with ability and disability. I travel in the space between. These are my postcards.

Tuesday, April 25, 2023

Maintenance Required

At the end of a busy week, my car's maintenance light comes on.

Oh no!  Not now!  I don't have time for this!

Maybe you've experienced this yourself.  

Or maybe you sense some foreshadowing here.  Remember the Green Goblin

I had a strange symbiosis with my old car. Whenever it got a flat tire, it was a sure sign that my body was headed for a breakdown too.

But this week, that maintenance light takes me by surprise.  

After a pink-ish start, I was moving at a pretty good clip.  By Friday, I even caught up with friends Cécile and Mark for a délicieux déjeuner and petite promenade through the spring blooms of their neighborhood.

A selfie of me, David, Cécile, and Mark in a suburban yard with trees behind us.
And bonus, I met their friend David --
 who's been "walking" with me (via this blog) 
for quite a while!

It was a good week -- a good "normal" kind of busy.

When things are going well, I sometimes forget that traveling with a disability uses a bit more fuel. 

At times, it drains fast and unpredictably.  My body is more sensitive to weather and schedule changes, dehydration, and overuse.  Every activity has a cost attached.

So when I suddenly feel tired and overwhelmed (a.k.a my body's maintenance light comes on), I shouldn't be surprised. 

A plaque that says "Pretending to be a normal person day after day is exhausting."
Yep, it's that.
Exactly.

Even a "normal" week requires careful curating -- and maintenance breaks.  

A photo of the exam table at the doctor's office with all my prosthetic gear strewn about.
It's a skill I'm still working on. 

I want to do everything, but I have to give my body what it needs.  Refuel it with short pauses.  

It's frustrating sometimes, but I try to think of them as small doses of self-care.  

It might mean canceling plans.  
Or prioritizing.  
Or scaling back a day to its most essential parts.
  
It might mean taking a breather -- like lying down to do my PT exercises.

The sunlit city sidewalk, with the sun bursting through the leaves of a tree.
Or feeling the sun on my face
first thing in the morning.

My 2 feet (prosthetic and real) on a stone path between two bushes of white flowers.
Or stopping to smell the flowers -- literally!

Or taking time out to write a "postcard" for this blog.  (Because that's refilling too.)

The challenge, like always, is finding a balance I can maintain.


I drive a different car now.  A hybrid. 

It's small and cute and gets about a thousand miles to the gallon.  (Kidding, of course -- but it goes pretty far on a single tank of gas!)

I wish my body had the same endurance...

As an amputee I'm grateful to be able to drive.  I depend on my car much more than I did when I had 2 legs. 

But that also means paying attention when the maintenance light comes on.  

Even if life is busy.  
Even if it's inconvenient.  
Even if it's just an oil change.
(which I hope it is!)

I know people say there's a time for everything.

I just haven't found it yet. :)


1 comment:

  1. Sounds like it's tough to find a balance. How did it work out?

    ReplyDelete